[Namron] One more try....
ironstorm34 at hotmail.com
Thu Sep 29 07:18:14 PDT 2005
>From: Jennene Stanley <mooharpist at cox.net>
>Reply-To: Barony of Namron <namron at ansteorra.org>
>To: Barony of Namron <namron at ansteorra.org>
>Subject: [Namron] One more try....
>Date: Wed, 28 Sep 2005 13:59:16 -0500
>Now that my eyes are finally cleared from that chemical spill that happened
>at the airport. Fun fun...
>Gotta make some comments..... then I am going to shut up and get on with
>what I really like to do, Play!
>>>>>....In our non-SCA daily life, we have to deal with harassment from the
>>>>>insurance company's private investigator, the insurance company
>>>>>refusing to pay for prescribed medications that he needs,......<<<<<
>Welcome to the wonderful world of have a disability. Been there, done
>that.... sill doing that and don't expect it to stop anytime in the near
>future. It's just one of those things you learn to put up with just like
>putting up with traffic, electric bills, and the mortgage. Everyone,
>whatever ability, has their own set of "pains in the patootee" that come
>with living they have to deal with. That's life.
><motivation speaker mode on>
>Some have said to me "Oh, I wish I had your strength" or "Tell me how you
>did it". Well, here's some of it. I'm not gonna sugar-coat it to preserve
>delicate sensibilities. This attitude I acquired did not come from sitting
>on my butt in front of a computer reading emails and indulging in
>electronic pity parties. The *personal* struggle to come to terms with a
>disability is something that everyone do for themselves. No outside laws,
>groups or guilds is going to do it for you. I feel that it is really a
>personal inner battle that you have to go through to become self actualized
>and at terms with what fate has dealt. Your friends and family can only
>help and support from the outside. But in the dead of night, when you look
>in the mirror and wonder "Is it really worth it?" Only, and I mean only,
>THAT PERSON in the mirror can make that decision. For the recently
>disabled: It's a hard enough road with out putting in your own obstacle
>course. Take what you have and start from the b!
>ottom, build your foundation, then work your way up. Sure, like everything
>else you are gonna fall on your butt. The way you get up and deal with that
>fall can make or break you. It's like a horse, get back on. *SHUT UP* about
>how much pain you are in. All that accomplishes is that the pain is the
>only thing you are thinking about and thus, it doesn't go away. Simple as
>that. Look for and embrace challenges because that is the PATH from having
>a disability and that disability having you.
><motivation speaker mode off>
>(And yes, I have done a lot of motivation speaking for the National
>Arthritis Foundation, C.D.C. and other groups and if you want the whole
>spiel, talk to my agent)
>>>>Unfortunately, the term "reasonable accommodation" seems to be open to
>>>>debate. I personally don't consider it unreasonable for an event
>>>>coordinator to do the research to choose a site that doesn't
>destroy vehicles, allows someone in a wheelchair to actually get into and
>use the bathroom, and has paths that don't have gullys that endanger the
>able bodied and prevent someone in a wheelchair from even leaving their
>Well, when you live in Oklahoma and want to commune with the outdoors on a
>low budget, it is. The fact is that we live in a state with very few sites
>within the driving distance from a home group, (to make multiple trips from
>storage buildings, ect), within our price range (under 10 bucks a head or
>so) and willing to rent to us. (alot of these camping sites are owned by
>religious folk. I'd rather deal with a gully then someone trying to force
>their moral beliefs on me) When I started playing here one of the main
>sites was Marlow (with NOTHING). We brought everything. If you needed it,
>you brought it. (I still remember Mairin's personal porta pot thingy she
>had in her tent). I couldn't really handle this kind of camping despite the
>help from my friends. But instead of complaining and insisting we go
>somewhere else or else, I came up with a solution. A camping trailer.
>(which we will be selling in the spring to get a new, larger one). I built
>a tent to hide it and have been l!
>iving in it at events ever since. There are some really cool ones now set
>up for AT toys that would be perfect for people needing access. Yes, it can
>be hard to get it in to site but we deal. (Brad is a wizard at trailer
>parking.) It is possible to get around. I've done it in my motor scooter.
>(hey, can we have races at Beltaine?) You have to sit down and put together
>personal strategies to deal that don't overly burden others. I don't
>particularly like Cimmiron either but I am going to play the game with the
>cards that are on the table while looking for something better.
>Some kingdoms don't even camp. I went to a event in Caid that was in a
>hotel. It had more of the feel of a SF Con then an event with the room
>parties and such. I had a lot of fun (even got to sit at the high table and
>participate in a gentille food fight). But it was expensive. The hotel
>catered the feast (they have a problem with folk bring in their own food)
>and you had to get rooms...ect. However fun (and accessible), I know I
>couldn't afford it on a regular basis. (around $300 per person for BASICS
>not including transportation.)
>My slant on the ADA
>I have had to function this world before ADA. When I was a child I wanted
>to learn to play the violin. All the in-house teachers thought I would be
>"setting my self up for disappointment" (and you don't even want to know
>how many time I heard that line growing up). My parents got into some faces
>and I got my violin lessons. Now I am a professional musician. But this did
>not come about because of any special consideration or special equipment. I
>learned and earned my place in music groups. An important lesson I carried
>into the rest of my life. What I believe the ADA is a mechanism that
>provides accessibility to the same experience and opportunities. It is not
>a shield to hide behind if you can't hack it. As for sites, *everyone*
>trips over those same gullys, gets quagmired in their camping site and gets
>their cars/SUV s torn the hell up. But we chose to subject ourselves to the
>same experiences. And it make for great stories around the campfire.
>I could go on ad nausem. I simply do not have the time. I hold down a job,
>keep my family going and have a ton of stuff to do that doesn't involve
>sitting in front of a computer all day. We have an event coming up and I
>gotta get ready for it. Feed me some Payment at Protectorate and we'll talk
> "There is nothing to fear in the dreaming, only that which we bring
> with us."
> -"Atonement" Babylon 5
>Email: Mooharpist at cox.net website: www.mooharpist.net
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