[Namron] One more try....

bobby harlow ironstorm34 at hotmail.com
Thu Sep 29 07:18:14 PDT 2005


>From: Jennene Stanley <mooharpist at cox.net>
>Reply-To: Barony of Namron <namron at ansteorra.org>
>To: Barony of Namron <namron at ansteorra.org>
>Subject: [Namron] One more try....
>Date: Wed, 28 Sep 2005 13:59:16 -0500
>Now that my eyes are finally cleared from that chemical spill that happened 
>at the airport. Fun fun...
>Gotta make some comments..... then I am going to shut up and get on with 
>what I really like to do, Play!
>>>>>....In our non-SCA daily life, we have to deal with harassment from the 
>>>>>insurance company's private investigator, the insurance company 
>>>>>refusing to pay for prescribed medications that he needs,......<<<<<
>Welcome to the wonderful world of have a disability. Been there, done 
>that.... sill doing that and don't expect it to stop anytime in the near 
>future. It's just one of those things you learn to put up with just like 
>putting up with traffic, electric bills, and the mortgage. Everyone, 
>whatever ability, has their own set of "pains in the patootee" that come 
>with living they have to deal with. That's life.
><motivation speaker mode on>
>Some have said to me "Oh, I wish I had your strength" or "Tell me how you 
>did it". Well, here's some of it. I'm not gonna sugar-coat it to preserve 
>delicate sensibilities. This attitude I acquired did not come from sitting 
>on my butt in front of a computer reading emails and indulging in 
>electronic pity parties. The *personal* struggle to come to terms with a 
>disability is something that everyone do for themselves. No outside laws, 
>groups or guilds is going to do it for you. I feel that it is really a 
>personal inner battle that you have to go through to become self actualized 
>and at terms with what fate has dealt. Your friends and family can only 
>help and support from the outside. But in the dead of night, when you look 
>in the mirror and wonder "Is it really worth it?" Only, and I mean only, 
>THAT PERSON in the mirror can make that decision. For the recently 
>disabled: It's a hard enough road with out putting in your own obstacle 
>course. Take what you have and start from the b!
>ottom, build your foundation, then work your way up. Sure, like everything 
>else you are gonna fall on your butt. The way you get up and deal with that 
>fall can make or break you. It's like a horse, get back on. *SHUT UP* about 
>how much pain you are in. All that accomplishes is that the pain is the 
>only thing you are thinking about and thus, it doesn't go away. Simple as 
>that. Look for and embrace challenges because that is the PATH from having 
>a disability and that disability having you.
><motivation speaker mode off>
>(And yes, I have done a lot of motivation speaking for the National 
>Arthritis Foundation, C.D.C. and other groups and if you want the whole 
>spiel, talk to my agent)
>>>>Unfortunately, the term "reasonable accommodation" seems to be open to 
>>>>debate.  I personally don't consider it unreasonable for an event 
>>>>coordinator to do the research to choose a site that doesn't
>destroy vehicles, allows someone in a wheelchair to actually get into and 
>use the bathroom, and has paths that don't have gullys that endanger the 
>able bodied and prevent someone in a wheelchair from even leaving their 
>Well, when you live in Oklahoma and want to commune with the outdoors on a 
>low budget, it is. The fact is that we live in a state with very few sites 
>within the driving distance from a home group, (to make multiple trips from 
>storage buildings, ect), within our price range (under 10 bucks a head or 
>so) and willing to rent to us. (alot of these camping sites are owned by 
>religious folk. I'd rather deal with a gully then someone trying to force 
>their moral beliefs on me)  When I started playing here one of the main 
>sites was Marlow (with NOTHING). We brought everything. If you needed it, 
>you brought it. (I still remember Mairin's personal porta pot thingy she 
>had in her tent). I couldn't really handle this kind of camping despite the 
>help from my friends. But instead of complaining and insisting we go 
>somewhere else or else, I came up with a solution. A camping trailer. 
>(which we will be selling in the spring to get a new, larger one). I built 
>a tent to hide it and have been l!
>iving in it at events ever since. There are some really cool ones now set 
>up for AT toys that would be perfect for people needing access. Yes, it can 
>be hard to get it in to site but we deal. (Brad is a wizard at trailer 
>parking.) It is possible to get around. I've done it in my motor scooter. 
>(hey, can we have races at Beltaine?) You have to sit down and put together 
>personal strategies to deal that don't overly burden others.  I don't 
>particularly like Cimmiron either but I am going to play the game with the 
>cards that are on the table while looking for something better.
>Some kingdoms don't even camp. I went to a event in Caid that was in a 
>hotel. It had more of the feel of a SF Con then an event with the room 
>parties and such. I had a lot of fun (even got to sit at the high table and 
>participate in a gentille food fight). But it was expensive. The hotel 
>catered the feast (they have a problem with folk bring in their own food) 
>and you had to get rooms...ect. However fun (and accessible), I know I 
>couldn't afford it on a regular basis. (around $300 per person for BASICS 
>not including transportation.)
>My slant on the ADA
>I have had to function this world before ADA. When I was a child I wanted 
>to learn to play the violin. All the in-house teachers thought I would be 
>"setting my self up for disappointment" (and you don't even want to know 
>how many time I heard that line growing up). My parents got into some faces 
>and I got my violin lessons. Now I am a professional musician. But this did 
>not come about because of any special consideration or special equipment. I 
>learned and earned my place in music groups. An important lesson I carried 
>into the rest of my life. What I believe the ADA is a mechanism that 
>provides accessibility to the same experience and opportunities. It is not 
>a shield to hide behind if you can't hack it. As for sites, *everyone* 
>trips over those same gullys, gets quagmired in their camping site and gets 
>their cars/SUV s torn the hell up. But we chose to subject ourselves to the 
>same experiences. And it make for great stories around the campfire.
>I could go on ad nausem. I simply do not have the time. I hold down a job, 
>keep my family going and have a ton of stuff to do that doesn't involve 
>sitting in front of a computer all day. We have an event coming up and I 
>gotta get ready for it. Feed me some Payment at Protectorate and we'll talk
>Jennene Stanley
>  "There is nothing to fear in the dreaming, only that which we bring       
>     with us."
>			      -"Atonement" Babylon 5
>Email: Mooharpist at cox.net 	website: www.mooharpist.net
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