[Namron] Info about St. Camilles de Lilles listserve

Isobel de Kirkbryde kirkbryde at yahoo.com
Sun Mar 26 19:56:05 PST 2006


The list this message refers to is a peer support group for SCA folk  worldwide who live with Chronic physical Illness and Chronic pain syndromes  and those who love/ care for them. [ as in friends and family]  
  [ illnesses like Auto immune / Connective tissue disorders/ Fibromyalgia/  Crohn's disease /Rheumatic disorders/ Arthritis [all types]/  Collagen Vascular disorders/ Organ Transplants / RSD/ MS/ Carpal tunnel/  minimal brain injuries/ diabetes/Heart diseases / breathing disorders/blood  disorders/ physical infirmities/ epilepsy /  and any others not listed  here Again, all chronic, intractable physical illnesses / limitations and  Chronic  Pain syndromes are welcome and supported here.]  
  This list a place to share tips and tricks for getting through the day.  It's also a place to get support [ hard to come by in the everyday world  and, sadly sometimes in our various "societies" too.] as well as a place  to learn more  about these various conditions from others who live  with them and from links to national associations for these disorders.  
  While this group is here for those with the disorders, it is also here  for the loved ones, friends and family of people with these disorders as  well. In my humble experience, those who support us suffer less anxiety  and frustration with more information... and I wish it to be a place that  will allow them to share their burdens as well, hopefully helping to reduce  "caregiver burnout" , and thereby aiding them to continue aiding us down  our sometimes rocky paths to a "happily ever after".  
  Group Page Address:  
  http://health.groups.yahoo.com/group/AI_s/?yguid=60736636  
  Contact the list owner [If you have questions or if you have  difficulty signing onto the list]  
  AI_s-owner at yahoogroups.com  
   
   

Lady Isobel de Kirkbryde
Deputy Hospitaler, Barony of Namron
Guild of St. Camillus de Lellis
		
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