[Namron] Info about St. Camilles de Lilles listserve
Isobel de Kirkbryde
kirkbryde at yahoo.com
Sun Mar 26 19:56:05 PST 2006
The list this message refers to is a peer support group for SCA folk worldwide who live with Chronic physical Illness and Chronic pain syndromes and those who love/ care for them. [ as in friends and family]
[ illnesses like Auto immune / Connective tissue disorders/ Fibromyalgia/ Crohn's disease /Rheumatic disorders/ Arthritis [all types]/ Collagen Vascular disorders/ Organ Transplants / RSD/ MS/ Carpal tunnel/ minimal brain injuries/ diabetes/Heart diseases / breathing disorders/blood disorders/ physical infirmities/ epilepsy / and any others not listed here Again, all chronic, intractable physical illnesses / limitations and Chronic Pain syndromes are welcome and supported here.]
This list a place to share tips and tricks for getting through the day. It's also a place to get support [ hard to come by in the everyday world and, sadly sometimes in our various "societies" too.] as well as a place to learn more about these various conditions from others who live with them and from links to national associations for these disorders.
While this group is here for those with the disorders, it is also here for the loved ones, friends and family of people with these disorders as well. In my humble experience, those who support us suffer less anxiety and frustration with more information... and I wish it to be a place that will allow them to share their burdens as well, hopefully helping to reduce "caregiver burnout" , and thereby aiding them to continue aiding us down our sometimes rocky paths to a "happily ever after".
Group Page Address:
http://health.groups.yahoo.com/group/AI_s/?yguid=60736636
Contact the list owner [If you have questions or if you have difficulty signing onto the list]
AI_s-owner at yahoogroups.com
Lady Isobel de Kirkbryde
Deputy Hospitaler, Barony of Namron
Guild of St. Camillus de Lellis
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