[Namron] OT: For those who have been asking after me...

[Doug Copley]

Sorry to hear the results of the tests:-( We will be thinking of you. 
Let us know if there is anything that we can do.

Hugs,
Vincenti

On 1/31/2011 10:12 AM, Melina de Mantua wrote:
> Greetings and much love to my Barony and Household. I’m sorry I’ve been
> so absent lately from our activities and the lists (although I’ve always
> been pretty quiet on the lists I guess). I haven’t wanted to say
> anything until the very last possible test could be done and there were
> no doubts whatsoever, just in case that 5% chance it could be something
> else did occur.
>
> I kept it pretty quiet but some of you may remember that I had what was
> diagnosed as a stroke last January in between the two shoulder
> surgeries. In late November of this year, I noticed some numbness below
> my waist, which in December turned into complete numbness all the way to
> my feet, like I’d been injected with Novocain. The neurologist found a
> lesion on my spine that was compressing my spinal cord. He went back and
> looked at the MRI from January and thought that it looked more like MS
> lesions than a stroke so he ordered a new MRI of my brain. It showed
> significantly more white matter lesions since January. The final test
> results came in today, which was the spinal tap. I do have MS with
> significant progression in just one year.
>
> I’ve been on steroids for the numbness but it only lessened it slightly.
> I’ll start steroid infusions, what my Dr. calls a five day steroid
> blast, as soon as this damn weather permits. If that doesn’t make the
> numbness go away, then it will likely be permanent.
>
> Rob and I have gone through a lot the last couple of years, with both of
> my shoulder injuries and what we thought was a stroke, grief at losing
> loved ones, and other personal issues. It’s been hard on him not being
> able to tell people what’s going on so I wanted to let people know what
> I could at this time so he wouldn’t have to field questions he really
> couldn’t answer. Feel free to give me a holler if you want to know where
> I am or how I’m doing on facebook (I’m trying to be better about
> checking it), in email or text or phone. I’m not trying to be out of
> contact, it’s just hard when you can’t feel the ground under you (and
> right now painful on my back) to get around a lot. And the steroids make
> me very susceptible to colds and such, so I keep catching stuff.
>
> I miss my SCA family and plan to be around more. Now that we have the
> final diagnosis, we can start treatments both for the MS and for the
> side effects. And, just like my shoulder, I’ll be damned if I’ll let
> this keep me from playing. It’s just taking me some time to wrap my mind
> around it and get my feet back under me, with it happening so soon after
> recovery from the shoulder injuries.
>
> My love to you all,
>
> Melina
>
>
>
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