[Namron] OT: For those who have been asking after me...

[Vallie Copley]

Sorry to hear those results, but now we can go forward with treatment 
:-) Will be thinking of you and keeping you in my prayers, I will be 
with you. Let me know if you need anything.

Hugs Margherita


On 1/31/2011 10:12 AM, Melina de Mantua wrote:
>
> Greetings and much love to my Barony and Household. I'm sorry I've 
> been so absent lately from our activities and the lists (although I've 
> always been pretty quiet on the lists I guess). I haven't wanted to 
> say anything until the very last possible test could be done and there 
> were no doubts whatsoever, just in case that 5% chance it could be 
> something else did occur.
>
> I kept it pretty quiet but some of you may remember that I had what 
> was diagnosed as a stroke last January in between the two shoulder 
> surgeries. In late November of this year, I noticed some numbness 
> below my waist, which in December turned into complete numbness all 
> the way to my feet, like I'd been injected with Novocain. The 
> neurologist found a lesion on my spine that was compressing my spinal 
> cord. He went back and looked at the MRI from January and thought that 
> it looked more like MS lesions than a stroke so he ordered a new MRI 
> of my brain. It showed significantly more white matter lesions since 
> January. The final test results came in today, which was the spinal 
> tap. I do have MS with significant progression in just one year.
>
> I've been on steroids for the numbness but it only lessened it 
> slightly. I'll start steroid infusions, what my Dr. calls a five day 
> steroid blast, as soon as this damn weather permits. If that doesn't 
> make the numbness go away, then it will likely be permanent.
>
> Rob and I have gone through a lot the last couple of years, with both 
> of my shoulder injuries and what we thought was a stroke, grief at 
> losing loved ones, and other personal issues. It's been hard on him 
> not being able to tell people what's going on so I wanted to let 
> people know what I could at this time so he wouldn't have to field 
> questions he really couldn't answer. Feel free to give me a holler if 
> you want to know where I am or how I'm doing on facebook (I'm trying 
> to be better about checking it), in email or text or phone. I'm not 
> trying to be out of contact, it's just hard when you can't feel the 
> ground under you (and right now painful on my back) to get around a 
> lot. And the steroids make me very susceptible to colds and such, so I 
> keep catching stuff.
>
> I miss my SCA family and plan to be around more. Now that we have the 
> final diagnosis, we can start treatments both for the MS and for the 
> side effects. And, just like my shoulder, I'll be damned if I'll let 
> this keep me from playing. It's just taking me some time to wrap my 
> mind around it and get my feet back under me, with it happening so 
> soon after recovery from the shoulder injuries.
>
> My love to you all,
>
> Melina
>
>
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